| LINK
TITLE |
DESCRIPTION |
|
Hailey-Hailey Disease Society |
501(c)(3) nonprofit
organization formed to provide support, education and correct information to
HHD patients, the healthcare communtiy and the public regarding
Hailey-Hailey Disease. Outreach includes this website, the website forum and
management of TalkHHD, a Yahoo Support Group. |
|
TalkHHD
Support Group |
International group of over 300 members. Support through group email and annual
Gatherings (mid-May). |
|
OMIM
- Hailey-Hailey Disease #169600 |
Description
of Hailey-Hailey Disease. Very technical. Large bibliography. Checked
March 2007. Recommended. |
|
OMIM
- ATP2C1 *604384 |
Mutations
in ATP2C1 cause HHD. Description and list of mutations found. Very
technical. Large bibliography. Checked March 2007. Recommended. |
 |
Excellent, authoritative
and VERY technical description of the mutations and aberrant protein causing
HHD. checked March 2007. Recommended. |
|
The
British Association of Dermatologists |
Pretty
good description, but greatly understates the nature of
outbreaks. Please note that HHD itself DOES NOT SMELL - only secondary
infections are malodorous. Checked March 2007. |
|
Hailey-Hailey
and how it compares to pemphigus. |
A
one page site from the The National Pemphigus Foundation (USA). Site
updated 16Mar2005.
Checked March 2007. |
| The
National Registry for Ichthyosis and Related Disorders |
Site
hosted by University of Washington (USA) and featuring a Registry (now
closed) for
sufferers of Ichthyoses and related disorders including Hailey-Hailey
Disease. Also has many links to information and resources about Ichthyosis.
Checked March 2007. |
 |
emedicine
online. Click on the image to go to an online medical text book with a
comprehensive medical description of HHD.
Checked March 2007. Recommended. |
|
Health
Sciences Library at McMaster University |
The most
comprehensive list of links to skin problems including HHD. Checked March
2007. |
|
|
Although this organization has an
amazing amount of information about rare "orphan diseases," its
description of Hailey-Hailey Disease as a synonym for pemphigus is
completely incorrect. NORD has been contacted for over two years, and while
they have agreed that their information is incorrect, they have done nothing
to correct it. Checked March 2007. NOT RECOMMENDED. |
| Dermatlas |
Dermatlas
- enables health care professionals and patients to access high
quality dermatology images on the Web. Type "hailey hailey" in the search
box. Checked March 2007. Recommended. |
|
Online
Medical Dictionary |
Medical
terms in an on-line, searchable form. Checked March 2007. Link OK. |
| Who
Named It .com |
Seems
its down to Drs. Hugh Edward Hailey and William Howard Hailey (1939).
Checked March 2007. Link OK. |
Dermnet - New Zealand |
Nice site by the New Zealand Dermatological Society - has a section on HHD
under 'Skin Conditions' Checked March 2007. Recommended. |
| The
Doctor's Doctor |
An
large collection of literature citations, but getting quite outdated -
last update 2002. Very technical description of
the disease (for medical types) - don't let it scare you. Checked March
2007. |
